Resources for Patients & Families

See here for a list of resources for patients from CanCOV, Long COVID Kids, and Patient-Led Research Collaborative.

• PLRC 2025 Long COVID Fact Sheet 

A fact sheet created by Patient-Led Research Collaborative (PLRC). 

• Long COVID Families

A United States nonprofit that supports children, caregivers, and anyone whose life has been disrupted by an infection induced illness.

• Pacing and Management Guide for Pediatric ME/CFS and Long COVID – ME Action

This guide is oriented toward caregivers of kids and teens with Long COVID. It provides some advice on pacing and management strategies, as well as some recommendations for school accommodations.

• MyGuide Long COVID - Post-COVID-19 Interdisciplinary Clinical Care Network (Provincial Health Services Authority)
• MyGuide Long COVID Customized Guide

This guide offers a variety of resources about Long COVID, including symptoms, recovery resources, and information for navigating returning to work and activity. The customized guide uses a short survey to provide a personalized selection of resources. 

• The Long COVID Education and Awareness Hub - St. John's Rehab Sunnybrook

A hub of resources for education, advocacy & public health messaging, health care and social reform, and peer support.