A patient-engagement framework that outlines key opportunities for action, setting the stage for worthwhile collaborations in the identification of health research priorities as well as in the design and conduct of research projects.
Scorecards to evaluate how effective a patient group and research partner collaboration will be at conducting patient-led research. These scorecards can demonstrate how patient groups and research partners can improve their inclusion of patients in the research process, and lead to improved outcomes. There are 3 scorecards that evaluate: Research Organization Readiness; Patient Burden; and Patient-Partner Governance.
See here for more resources for researchers from Patient-Led Research Collaborative.
