A patient-engagement framework that outlines key opportunities for action, setting the stage for worthwhile collaborations in the identification of health research priorities as well as in the design and conduct of research projects.
A published Framework of Research Priorities in COVID Rehabilitation, developed by the Rehabilitation Science Research Network for COVID, and collaborators, through 5 consultations. This Framework of Research Priorities in COVID Rehabilitation provides a foundation to advance COVID-19 and Long COVID disability and rehabilitation research to promote the health and well-being of persons with COVID-19, Long COVID, and their caregivers. The Framework may be used by researchers, clinicians, trainees, and members of the community to inform future COVID rehabilitation research.
Scorecards to evaluate how effective a patient group and research partner collaboration will be at conducting patient-led research. These scorecards can demonstrate how patient groups and research partners can improve their inclusion of patients in the research process, and lead to improved outcomes. There are 3 scorecards that evaluate: Research Organization Readiness; Patient Burden; and Patient-Partner Governance.
The vocational rehabilitation roadmap has been developed specifically for people living with Long COVID, to guide a clinician through the process of identifying and helping someone to overcome some of the various work-related obstacles caused by Long Covid symptoms and/or the workplace.
See here for more resources for researchers from Patient-Led Research Collaborative.
