2025-2026 Recipient of the Catalyst Grant

Project Title: Mapping Trajectories of Disability Using the Episodic Disability Questionnaire in Long COVID

Team

Kelly O’Brien, Lisa Avery, Darren Brown, Adam Brown, Todd Davenport, Soo Chan Carusone, Angela Cheung, Mark Faghy, Susie Goulding, Mary Kelly, Sarah O’Connell, Margaret O’Hara, Kieran Quinn, Anisha Sekar, Leticia Soares, Tai-Te Su, Cathy Thomson, Julia Moore Vogel, Hannah Wei, Kiera McDuff, and Julia Nathanson

Research Overview

Long COVID is characterized by multidimensional physical, cognitive and social health challenges, known as disability, which can fluctuate over time. We aim to describe the episodic nature of disability among adults living with Long COVID and identify rehabilitation strategies to prevent or mitigate episodes of disability. We will conduct a community-engaged study involving questionnaires (episodic disability questionnaire), digital wearable sensors (biometric outcomes), and interviews to explore the nature and extent of fluctuations of disability over time. Results will help to inform assessment of disability for future intervention studies on safe rehabilitation for people living with Long COVID.