Principal Investigators: Janet Parsons (NPI), Associate Professor, Dept. of Occupational Science & Occupational Therapy and Rehabilitation Sciences
Institute, University of Toronto (Core Faculty); Clara Juando-Prats (co-PI), Assistant Professor, School of Nursing, Lakehead University; Dalla Lana School of Public Health, University of Toronto
Co-Investigators: Billie-Jo Hardy, Assistant Professor, Dalla Lana School of Public Health, University of Toronto
Collaborators: Tamara Rader, Member, Patient & Community Advisory Committee, TickNet Canada; Jennifer Kelly, Member, Patient & Community Advisory
Committee, TickNet Canada; Emily Rack, Member, Patient & Community Advisory Committee, TickNet Canada
Lyme disease is an emerging public health threat in Canada. Due to complexities of diagnosis, treatment and familiarity with Lyme, many people lack timely care, and some go on to develop chronic sequelae. Chronic Lyme is considered an Infection Associated Chronic Condition (IACC) and patients’ experiences share similarities with those living with Long COVID, with important differences. Our project will develop an educational toolkit for clinical learners (e.g., rehabilitation professions, nursing, medicine) to accompany a research-based film we recently completed focused on living with Lyme. We will also evaluate the film’s impact on a range of
audiences (in-person and on-line).
